For quite some time I have been deliberately vague when asked if and when I will perform again. I’d now like to explain the reason for my evasiveness. I do this reluctantly but my life pretty much depends upon it so here goes:
I have a terminal kidney disease known as PKD (Polycystic Kidney Disease). It’s a hereditary condition and it’s incurable. I’m kept alive by dialysis, which I do at home 3 or 4 times a week.
The preferred alternative to dialysis is a kidney transplant. Two years ago, when this need was first identified, some of my dear friends volunteered. One by one they failed various stages of the screening processes.
This week I received news that I no longer have any ‘live donors’ left.
I’m now back again in line waiting for a deceased donor. This call could come at any time or never – due to our high incidence of diabetes and obesity, there are hundreds of people needing kidneys.
So my best and preferred option is to find a live donor.
My wife and most of my family have conditions that prevent them being donors and so I find myself reluctantly broadcasting my need to anyone who might be listening. Unless I receive a transplant, I will be strapped to a machine for the rest of my life — however long that might be. And you can imagine how that will restrict what I can do. Certainly performances outside Auckland or concert tours will be out of the question.
If it all ended tomorrow it would have been a good innings, and in some senses I would have made my mark. Nevertheless, I’d like to go on for a lot longer because I have so much more I would like to do with words and music and life in general.
So …
If you know of anyone who might consider being a donor, please share this and/or contact 0800 LIVE DONOR
Thanks for listening
Hope it all works out for you John…. Be positive
Is your blood group compatible with mine – A+?
Hi Bronnni, believe it or not I don’t know my blood type. The person to ask is probably Michelle Elima who’s details are in my blog. As I understand blood type is not as important as it once was.Thank you for even considering this. Take care, John
Oh John just saw this when I realised I had missed your Birthday.. so 1st things 1st…a belated Happy Birthday.. and Cuz you are now on my Prayer list.
Mum had a Kidney problem too… dialysis for years, but it was certainly worth it for the extra years we had with her, but I do hope that you find “the Perfect Match”
No one told me for 3 months, I’ve only just found out now Becuase it popped up by chance. Don’t know how to feel about it it’s kinda a depressing suprise.
Don’t be depressed. I’m ok for now and exploring all my options. Please have a Happy Xmas and fulfilling new year. Get things done 🙂
hi john
been a long time not good news about the PKD
but is going to work out..
I still have all the records and the demo tapes you sent me
may be over in nz later in the year
would be great to see you for a quick visit
god bless…….
terry reeder ..Brisbane ..